Moving to our new location was necessary due to all of the circumstances we found ourselves in, but...
- I'm now 45-50 minutes away from my job
- I'm gone 10-11 hours each day
- When I get home from work, I have dinner, laundry, any cleaning that needs to be done
- Sometime during the week, Ron needs to get showered (ideally, more than once but I do what I can)
- Food, water. Some days, he tells me "all I had to eat today" stories. I leave stuff that he can eat - fruit, yogurt, frozen vegetables, things he can heat up, etc.
- Medications. He does a pretty good job of taking his daily meds but some days he takes the evening dose instead of the morning dose. Or, he forgets to take them entirely and I'll catch him fixing to take his morning pills late enough in the day that he can't safely take his evening pills when he should.
- Medical visits. We can get a ride to the doctors' offices if they're local and he's already been once. The cost is anywhere from $5 to $11 per trip. That's cheaper than me taking off from work or driving each direction more than once.
- Knee surgery? The only way Ron is going to get any relief from is left knee is to have replacement surgery. I know there are risks involve and so does he. He will have to go to rehab until he can be mobile again. I cannot lift him or transfer him. I'm just not strong enough. He sees the new orthopedic surgeon on10/7.
- Neurologist? He sees a new neurologist on 10/17 to find out if there's anything that can be done about the tremors. Ron shakes, sometimes so badly that he just can't even get up and walk. He's trying to wear his leg and get around but between the body shakes and the knee, it's a losing game.
- What next? Today, he took Maisey out but got hung up on the ramp and could not get his wheelchair moved from where it was stuck. Since I wasn't here I don't know exactly how but I guess he was "high centered" and stuck. He ended up crawling out of the wheelchair onto the patio and back into the living room. He called the main building and asked for someone from maintenance to come and help get his wheelchair off the ramp. Maisey was outside loose so he was worried that she would run away.
I had to say, "Ron, how many times do I have to tell you you have got to put your leg on the floor. You cannot slide across." Thank God, he doesn't try to shower by himself. I think I need to hire someone to come in at least once a week to help him with ADLs, at least the shower portion of it. But I'll need a giant of a man to do it. Don't know of "aids" that are men who I could hire, but I think I'm about to find out. Ron's friend, Chuck, is big enough and strong enough to help. He takes Ron out frequently and is great about taking him to the bathroom if they're out and he needs to go.
There are days when I'm having conversations with Ron and I think that he's perfectly fine (in the mind) and will be OK when he gets his knee fixed and the tremors taken care of. Other days, I have conversations with him and have to step back and analyze what he's saying. Or what he's not saying. He forgets little things that could be overlooked and missed by most people but I pay attention. He says that he's perfectly fine. He says things that make no sense and thinks he's funny. He says he's losing his mind and I have to agree. He is sometimes so far out in left field that I think I'm losing my mind.
Some days I'm sure that I'm losing my mind.